‘‘It sounds a bit strange but when I was diagnosed with a hypermobility syndrome I actually felt relieved. For a big part of my life I didn’t know what was wrong with me. I would always feel so exhausted and my body would hurt. When the doctor diagnosed me I finally knew I wasn’t exaggerating. Because my condition isn’t something you can see from the outside it is really hard for other people to understand my limitations. Because of my limitations its really hard to find a job. Even if I were employed I probably would be physically disapproved. However, I don’t want to have to depend on welfare and I belief I can contribute to society with my art. I never gave up my passion for painting and illustrating so I decided to work as a freelancer. There is a lot of competition in my field and still I am struggling to get enough work but I really love my job. I am also really blessed with the people around me. My boyfriend for example, he doesn’t make a big deal out of my condition and he gives me the feeling that I am much more than my disease. Also my friends are incredible. 9 out of 10 times I am fatigue and I have to cancel going to their events such as birthday parties and weddings because I am experiencing a lot of physical pain. Still they keep inviting me even though I can never really commit. That just means the world to me.‘‘

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